Hello Im all over the place today and don't know what to think. Caoimhe's infantile spasms improved greatly over the last 5 days - down now to between 20 and 40 a day compared to her usual 100! Thought things were finally changing for the better. Then the thing I feared most happened. Caoimhe has a tonic clonic, although it only lasted about 30 seconds it frightened the life out of us. Only a few wks ago I watched the Matthews friends dvd and saw Matthew having a seizure. Although this was very hard and sad to watch It did help recognise what was going on with Caoimhe. Thanks Emma! Caoimhe is having a lot of sudden involuntary movements lately. Im up the walls at the moment because I don't know what is going on. Have rang the hospital but waiting for someone to get back to me. Has anyone experience of anything similar. Do you think its likely Caoimhe will have more of these now. Should we get diazapam. Sorry for all the questions but don't know what to think. Can't keep my eyes off her now. Thanks A very worried mum. ...
Anytime
